“For centuries, community builders, social justice engineers and freedom fighters–most of whom are multiply marginalized–have been doing exhausting and traumatizing life-changing & life-saving work with and for no money; with no sleep, health or mental health care; and with no institutional support. Our work is done for advancement not accolades; for freedom, not financing; for liberation, not to be lauded. Our work is not trackable, billable, fungible, settlement negotiable. Our work is invaluable. Our work is deeply rooted in love. I honor you.”
- Talila A. Lewis, Fighting for Freedom & the Expense of Erasure
Friendly reminder to please use
spoiler tags and content warnings [cw]
for sensitive content that falls under Hexbear’s Code of Conduct. You can find the spoiler tag here:

Alt Text of image
Alt text of image: a screenshot of a comment box and its editing options, with a dark theme, grey and dark grey background with white text. A skinny white arrow points to the “spoiler” option, which is an exclamation point inside of a diamond, and the 13th or second-from-the-last icon in the middle of the photo and at the top of the light grey comment box that reads “Type here to comment…” in white italic font
After clicking it, substitute the second “spoiler” with your content warning and the three underscores ( ___ ) with your sensitive content.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.


What the…nevermind, I should know by now that this is what the NHS does to people. I’m so sorry, love, is there really nothing you can do now?
I’ve sent an email to the appointments people, explaining that I never received the letter and that I do still need an appointment. I will see what they say. Tbh I don’t hold out much hope of the neurologist actually helping me, but I need to be in active treatment to help my benefit appeal.