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@SoyViking@hexbear.netIts the kids’ birthday this weekend. We’ve organised everything ourselves for years just to have like 3 kids turn up. This year I said fuck it and booked a play centre, so of course this is when everyone rsvps
My corporate employer subsidized group health insurance plan carrier has refused to pay for IVIG for my son who has an autoimmune disorder clinical diagnosis from his pediatric neurologist.
We are appealing, but the way this commonly goes apparently is that they pay for one round of fourteen, if they pay for any at all, assuming we are able to get the denial reversed.
I am told it is about $4.5k per transfusion procedure, which lasts four hours.
I don’t even know how to keep my son from ripping out the IV, let alone sit still for four hours.
His autoimmune disorder comes with neuropsychiatric behaviors which include extreme aggression, self-injury, and hours of non-stop screaming at the top of his lungs.
My family doesn’t know what to do and everything is falling apart.

No advice, just internet hugs. I’m sorry you and your family are going through this.
It’s getting really close to time for the talk.
No not sex. Capitalism. Why does daddy have to go to work every day? The basic answers are not cutting it anymore.
Why do you need to get money? Why do we need money to get toys? Why can’t we play the games we used to be able to play?[we stopped paying for the playstation version of game pass]
Any tips to keeping it light while not outright lying? Might be too early to say “supervillains may not exist but we have something similar, billionaires”
Any tips to keeping it light while not outright lying? Might be too early to say “supervillains may not exist but we have something similar, billionaires”
We read a lot of kids books that touch on the subject: Swimmy, the Lorax, Yertle the Turtle, click clack moo, and just a lot of social justice and lgbtq+ books. They don’t have to understand marxism and you don’t have to bum them out either. Kids aren’t stupid, they can understand why we dislike people like Musk hoarding wealth.
Aside from that we take the kids to [light] protests. We have them read the signs and try to plainly answer their questions.
I feel like I’ve had this talk, but in small bites over the years. Usually, the question of “why do you have to go to work every day?” gets the simple answer “Well, I need to make money.” which usually just creates more questions anyway. Sometimes the question is “Why do I need to go to daycare?” and the answer is “Well, because me and your mom have to go to work.” Sometimes that generates another question, sometimes it doesn’t. When it does, like “Why!” the answer is the same: “Because I need more money for you kids.” At some point, they’ll ask about why we go to the store every other weekend, which has a simple answer: “Well, we need food to eat, don’t we?”
You get enough of these questions over time, and you end up talking in a loop. “Why do we have to go to daycare??” -> “Remember how we went to the store this weekend to get all that food?” -> “Yeah…” -> “Well, I bought that food with money, and you have to go to daycare, so I can go to work, so I can get more money”.
You hit it with them all at once, and they’re going to just glaze over. Or you’ll be in the middle of it and then they’ll tell you a story about how this one time when they were at daycare they saw their friend and that friend had a dinosour t-shirt on, and they like diosours, so they stomped around pretending to be dionsours, and that was a lot of fun, and oh what are we doing today and blah blah blah blah blah, what were we talking about?
I think at some point I was even asked why I have to work all day, and my answer was something like “Well I give up some of my time each day, and my job gives me money for that time I give up.” something like that. At some point you’ll realize you’ve explained most of the basics of the system to them.
Thanks i think i have actually said something similar like “people need buildings to be built so they give people like me money to help them build it”
I have to start posting in this thread more
You can also join us in the matrix chat too!
I had the kids watch The Addams Family over the weekend. My oldest wasn’t super into it at first, “It’s weird!” and “It’s scary!” but then the movie started picking up and it got very wacky and silly, and she absolutly loved it. We watched The Addams Family Values the next day, and she thought that movie was also great. The Addams Family Values is the only Thanksgiving movie in my heart (I honestly don’t know if there are any others really).
In about a week, our K2 is moving to his new daycare. We ran into some parents while trick-or-treating who also go to our current daycare; they told us that they are also switching to this new daycare, which is great! He gets along really well with their kiddo; it’s adorable, so I’m super happy he’s going to have someone he knows there. They’re not starting until the start of the year, though.
Lol K1 asked me today if I was going to go vote tomorrow. I said, “That’s a good question…” and I had to think about it for a second. I then told her, “I’ll tell you this: I think it is good to go out and vote, because you should have a say in who gets to make the rules. Also, sometimes, they put rules right on the ballots (the thing you vote on), and those are very important to vote on, because it gives you the power to make the rules.” We talked a little more about rules, and who gets to decide on the rules. Funny, she was also asking me about “donating” because we have a bunch of old clothes to donate. She didn’t know what “donating” was. So I explained that some families have to make choices between buying food, buying shoes, or paying for their house, and for those people, they usually do not end up buying the shoes. I said that doanting is a way to give those people shoes or clothes for free or at a very very low cost, so they don’t have to choose. Which she understood. I then told her though, “Well, you know, if there are people in the world who don’t have enough money for shoes, then that probably also means there are people with too much money too,” and she told me “Well maybe they can donate more shoes”. I told her, “Thats good thinking; they should do that. But, I’ll tell you this, they usually don’t.” She looked at me and told me “Well that’s not fair.” I laughed, and said that I absolutely agree with her. I told her, if it were up to me, if I made the rules, people wouldn’t have to choose between food and clothes, but also, “I don’t make the rules, do I?” to which she told me, “Nope!”
It was a silly conversation, mostly. I did have to laugh at her snap response to the idea that people with a lot of money wouldn’t use it to buy needy people shoes, though. We don’t talk directly about politics often, but me and my SO don’t avoid talking about politics with each other around the kids. So I’m sure they pick up bits and pieces here and there.
You did some wonderful parenting right there, I am thoroughly impressed. You’re a good dad for this alone.
Hope K2 gets to enjoy the new daycare!
I hope so to. I think it’s going to be more structured than the current one, and he really needs that structure right now. He’s a funny little guy, but he’s got a little temper brewing in him too, and hopefully they can help him with that throughout the day.
I’m keeping my fingers crossed for him & the rest of the family. It’ll all work out just fine, I’m sure <3
Agree with gingerbrat that is some great parenting! It will bring your kid far.
Oh hey you did something similar to what I’m trying to do! My one is barely 5 so the brain is really working overtime but has no context for anything
We had a long weekend here and I took the kids up to see their great grandfather. I’m so glad they get a chance to see him and that my grandfather gets to see his great grandkids as well. My grandfather is 98 and still going strong so I hope the kids will actually get to remember him when they’re older. Once my kids grow old they could have living memory of someone born almost 200 years ago, that’s a cool thought. My grandfather is such a nice person, he hasn’t been brainwormed by all the things they try to catch old people with, you can still have a conversation with him and it’s worth doing so. If anyone deserves to be remembered for such a long time it’s him.
Funny, is your grandfather my grandfather? My uncle is a huge maga head and my grandfather (just turned 90) gives him shit over it all the time. My kids got to see him for his birthday and he loves seeing them. He’s hard of hearing but man hell talk your ear off. He knows everything going on in his town. Still talking shit about his 90+ yo neighbors. Loves talking shit about Republicans. He’s going in for surgery soon. First a valve replacement, but that’s so he can get his hip replaced. Which might be bad for all of us because his hip is the only thing stopping him from being an independent man about town right now.
They sound very similar. My grandpa actually lived alone until last year when he decided at 96 to go into a home. He still drive into town and got the paper everyday to talk to people and see what was going on.
At the end of 2022 he caught COVID and I took him into hospital. We realised he hadn’t been to hospital for anything serious since a minor heart attack back in like 2007. He’s not the sort to be obsessed with health and living forever, it seems like he’s been lucky enough to not have anything go wrong.
We had a great block party on Friday and trick-or-treating on Saturday. Little Beaver is the youngest kid of the block, but she was running around with everyone else trying to keep up. I’m realizing how much the kids bring the neighbors together. We don’t necessarily have much in common except them, but obviously enough that we can enjoy each other’s company for a few hours.
4 year old has been all about Alice Cooper’s “Feed my Frankenstein” after hearing it on a Halloween playlist. It’s too funny, but I’m hoping this doesn’t get us in more trouble with her school
More trouble?? Lol I listen to a lot of Jesse Wells in the car and while its funny to hear my kiddo sing something like the chorus to Whistle Boeing: “You could know a lot, you could know a little but whatever you know just don’t blow the whistle; You can toot a flute you could play the fiddle but whatever you do just don’t blow the whistle” but some days I wonder if shell be singing it in class lol.








