“For centuries, community builders, social justice engineers and freedom fighters–most of whom are multiply marginalized–have been doing exhausting and traumatizing life-changing & life-saving work with and for no money; with no sleep, health or mental health care; and with no institutional support. Our work is done for advancement not accolades; for freedom, not financing; for liberation, not to be lauded. Our work is not trackable, billable, fungible, settlement negotiable. Our work is invaluable. Our work is deeply rooted in love. I honor you.”
- Talila A. Lewis, Fighting for Freedom & the Expense of Erasure
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The bloody NHS yet again. I am so sick of it. Last year I was told they’d send me an appointment with the neurologist. Yesterday i received an accusatory letter telling me I’d missed my appointment and they wouldn’t send me another one. But I never even received any letter telling me I had an appointment in the first place. I am so tired of this absolute shambles. Trying to keep on top of this nonsense is a full time job.
What the…nevermind, I should know by now that this is what the NHS does to people. I’m so sorry, love, is there really nothing you can do now?
I’ve sent an email to the appointments people, explaining that I never received the letter and that I do still need an appointment. I will see what they say. Tbh I don’t hold out much hope of the neurologist actually helping me, but I need to be in active treatment to help my benefit appeal.